Comments on: Experts on McArdle’s Disease http://mcardlesdisease.org Information About McArdles Disease or Type V Glycogen Storage Disease Sun, 06 Jun 2010 18:04:01 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Emile Thebaud http://mcardlesdisease.org/mcardles-disease-health-care-resources/experts-on-mcardles-disease/comment-page-1/#comment-1444 Emile Thebaud Fri, 26 Mar 2010 20:49:21 +0000 http://mcardlesdisease.org/?page_id=34#comment-1444 Ive had McArdles my whole life i remember the pain and humiliation, also being so winded i vomited many times just from cutting the lawn. Now im all grown up i am finding it very difficult to do my job, im a pressman and it is very strenuous work,lots of muscle cramping,i recently put a pedometer on to see how many steps i walked in a 12 hour shift it was unreal 14000 steps and that was a good day. My wife thinks im using the disease as an excuse,and that hurts even more then the muscle cramping,even having sex i had muscle cramping near the groin where i couldnt even walk to the bathroom.need advie emile.thebaud@cogeco.ca Ive had McArdles my whole life i remember the pain and humiliation, also being so winded i vomited many times just from cutting the lawn. Now im all grown up i am finding it very difficult to do my job, im a pressman and it is very strenuous work,lots of muscle cramping,i recently put a pedometer on to see how many steps i walked in a 12 hour shift it was unreal 14000 steps and that was a good day. My wife thinks im using the disease as an excuse,and that hurts even more then the muscle cramping,even having sex i had muscle cramping near the groin where i couldnt even walk to the bathroom.need advie emile.thebaud@cogeco.ca

]]> By: marlese weaver http://mcardlesdisease.org/mcardles-disease-health-care-resources/experts-on-mcardles-disease/comment-page-1/#comment-1352 marlese weaver Wed, 17 Mar 2010 20:29:05 +0000 http://mcardlesdisease.org/?page_id=34#comment-1352 Does any one even know if accupril can make mcardles worse as i suffer from terrible migraines weekly. Thanks Marlese Does any one even know if accupril can make mcardles worse as i suffer from terrible migraines weekly.
Thanks Marlese

]]> By: Brenda Krushnisky http://mcardlesdisease.org/mcardles-disease-health-care-resources/experts-on-mcardles-disease/comment-page-1/#comment-1097 Brenda Krushnisky Tue, 12 Jan 2010 16:12:38 +0000 http://mcardlesdisease.org/?page_id=34#comment-1097 <a href="#comment-770" rel="nofollow">@Rita Wagoner </a> Hello Rita, Just read your post here and the diabetes and McArdles caught my attention. Do you have both diseases? I do, I was diagnosed with McArdles 9 years ago, and Type 1 diabetes 6 years ago. I would love to hear more about this if possible. @Rita Wagoner
Hello Rita,
Just read your post here and the diabetes and McArdles caught my attention. Do you have both diseases? I do, I was diagnosed with McArdles 9 years ago, and Type 1 diabetes 6 years ago. I would love to hear more about this if possible.

]]> By: Rita Wagoner http://mcardlesdisease.org/mcardles-disease-health-care-resources/experts-on-mcardles-disease/comment-page-1/#comment-770 Rita Wagoner Mon, 28 Sep 2009 23:22:21 +0000 http://mcardlesdisease.org/?page_id=34#comment-770 I just wish Dr. Slonim was closer but he isn't and he has treated me in person and over the phone but there is only so much he can do. I wish there was more research .I wish I understood more about diabetes and McArdles and also heart disease.It would also be nice if there were resources to help with some of the expenses to go and see these physicians. Thanks Rita I just wish Dr. Slonim was closer but he isn’t and he has treated me in person and over the phone but there is only so much he can do. I wish there was more research .I wish I understood more about diabetes and McArdles and also heart disease.It would also be nice if there were resources to help with some of the expenses to go and see these physicians. Thanks Rita

]]> By: Stacey Reason http://mcardlesdisease.org/mcardles-disease-health-care-resources/experts-on-mcardles-disease/comment-page-1/#comment-109 Stacey Reason Mon, 08 Dec 2008 17:39:24 +0000 http://mcardlesdisease.org/?page_id=34#comment-109 Hi There ~ I recently came across this article - McArdle Disease: what do neurologists need to know? (Aug 2008). It was quite good - an easy read...Here is the link! http://www.nature.com/ncpneuro/journal/v4/n10/pdf/ncpneuro0913.pdf Cheers, Stacey Hi There ~ I recently came across this article – McArdle Disease: what do neurologists need to know? (Aug 2008). It was quite good – an easy read…Here is the link!

http://www.nature.com/ncpneuro/journal/v4/n10/pdf/ncpneuro0913.pdf

Cheers,
Stacey

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