Experts on McArdle’s Disease
Experts on McArdle’s Disease
There are a handful of doctors who can be considered experts on McArdle’s disease. They include:
Dr. Ronald G. Haller, M.D. – Director of the Neuromuscular Center
at Presbyterian Hospital of Dallas (Texas). Dr. Haller is a renowned expert in metabolic disorders of skeletal muscle and has authored more than 100 publications. Dr. Haller’s research is responsible for much of what is to date known about the disease and its management.
Dr. Alfred E. Slonim, M.D. – Director, Division of Metabolism, Schneider Children’s Hospital at North Shore (Long Island, New York). Dr. Slonim is a nationally and internationally recognized authority in metabolic diseases, particularly metabolic muscle diseases, glycogen storage diseases and inflammatory bowel diseases. He has published numerous articles in peer reviewed journals and presented at both national and international medical meetings on his innovative concepts on the treatment of these conditions.
To add a name to this list of experts on McArdle’s disease, please leave a comment on this page below.
Ive had McArdles my whole life i remember the pain and humiliation, also being so winded i vomited many times just from cutting the lawn. Now im all grown up i am finding it very difficult to do my job, im a pressman and it is very strenuous work,lots of muscle cramping,i recently put a pedometer on to see how many steps i walked in a 12 hour shift it was unreal 14000 steps and that was a good day. My wife thinks im using the disease as an excuse,and that hurts even more then the muscle cramping,even having sex i had muscle cramping near the groin where i couldnt even walk to the bathroom.need advie emile.thebaud@cogeco.ca
Does any one even know if accupril can make mcardles worse as i suffer from terrible migraines weekly.
Thanks Marlese
@Rita Wagoner
Hello Rita,
Just read your post here and the diabetes and McArdles caught my attention. Do you have both diseases? I do, I was diagnosed with McArdles 9 years ago, and Type 1 diabetes 6 years ago. I would love to hear more about this if possible.
I just wish Dr. Slonim was closer but he isn’t and he has treated me in person and over the phone but there is only so much he can do. I wish there was more research .I wish I understood more about diabetes and McArdles and also heart disease.It would also be nice if there were resources to help with some of the expenses to go and see these physicians. Thanks Rita
Hi There ~ I recently came across this article – McArdle Disease: what do neurologists need to know? (Aug 2008). It was quite good – an easy read…Here is the link!
http://www.nature.com/ncpneuro/journal/v4/n10/pdf/ncpneuro0913.pdf
Cheers,
Stacey